On February 23rd I received a message from Dan’s mother that really put my faith to the test. In it she revealed to me something that happened to her in the prayer room at the International House of Prayer. She had asked God to speak to her as she opened her Bible… her prayer was not for Him to speak to her about anything in particular, but just to speak to her. As she opened her Bible she felt the Holy Spirit telling her to pay very close attention to the first verse that she saw. It was 2 Kings 4:36-37 “Then Elisha summoned Gehazi, ‘call the child’s mother!’ he said. And when she came in, Elisha said, ‘here take your child!’ She fell at his feet overwhelmed with gratitude. Then she picked up her son and carried him downstairs.” Dan’s mother reminded me that when Elisha first arrived, the child was dead… and Elisha after praying to God, through the power of God, brought the child back to life. She then went on to prophesy and state that she believed that I would pick up Eliana from the hospital and carry her home.
This is
exactly what happened.
Everything
has been a blur since Tuesday morning when we got the word that we would be
discharged and sent home. Yes, sent home and not to a hospital in Winnipeg. It
is hard to believe that three days have flown by so fast; discharge orders,
prescriptions to be filled, packing, and all the logistics of getting our
little girl home have consumed us.
We are so
thankful to be home, now we have to learn to live without the crutch of the
hospital.
Tuesday
was spent running; running from one appointment to another with Ellie to ensure
that we were both physically and mentally prepared for what was to come. Like
everything else on this journey it was a bit overwhelming, but in the
forefront of our minds we knew that this meant Ellie was doing better and
her condition would be manageable at home.
The
flurry of activity left us little time to update anyone other than family
on Tuesday.
We
arrived home very late Tuesday night and were greeted thankfully by Dan's
mother and Manfred. Dan was a wreck for most of the flight, he just could not sit
still, and every noise that Ellie made the more anxious he got. Thankfully
Ellie slept through most of it.
Getting
home was a profound reminder to both of us of what we have all gone through
over the past few weeks. Walking into Ellie's room made us very emotional. However,
it felt like there was only a small window of time to get things ready for
Ellie's next feeding and her next round of drugs so we pulled ourselves
together and went into "business" mode. Ellie's drug regime is made
up of four different medications taken at specific time intervals throughout
the day. So we spent much of the night/morning trying to get settled and
develop a workable schedule for our next few days. Three am comes fast when you
are running on pure adrenalin.
To say
that we slept lightly would be an understatement.
Wednesday
would be the start of our new life together. Thankfully the nurses in Edmonton
had Ellie well-conditioned to a strict schedule of feeding and medicine taking.
So she was quite content with everything as long as we kept to this schedule.
Dan on the other hand was really struggling with the build up of guilt he was
feeling for not being here when this ordeal began. For most of the day he did
not sit down, instead he tried to clean every surface in the entire house and
make things as comfortable as possible for Ellie and I. With the exception of
Dan feverishly cleaning it was a very low key day. My sister and family stopped
by to drop off some much need groceries and to introduce Dan to his new niece
Eden. It was a great to see them and the joy in their face when they got to see
Ellie laugh and giggle.
Sleeping Wednesday
was better than the previous night but not by much. Ellie was experiencing
pretty bad gas, which normally is not a big deal, only we are both so sensitive
now to the slightest deviation from her “normal” that we both begin to freak
out a bit. Logic tells us that this will eventually subside, hopefully soon for
everyone’s sake.
In anticipation
of Dan going back to work on Friday we tried to treat Thursday as a typical
work morning. We worked well as a team feeding her and getting her morning
medicine ready but by 8:30 I was completely exhausted. Dan graciously suggested
I take a much needed nap and he would spend the morning with Ellie. It felt
like he is finally starting to relax and act a bit more like himself.
The rest
of the day was spent organizing space for Ellie’s medicine, moving her crib
closer to our room, at least temporally until we both relax a bit, and trying
to get done all the domestic things we need to in a typical day. It was trying
at times while we assessed what our daily priorities should be, domestically
speaking, and what in fact we actually had time for. One thing that we have not
had to worry about thus far is food. Our families, church family, and friends
have been incredibly generous with dropping off homemade meals. We easily have enough
dinners to last us into next week while we fully acclimate to our new lifestyle.
Thank you everyone for this amazing blessing.
Tomorrow
will be the real test of everything as Dan goes back to work and we have our
first Winnipeg Doctors appointment. This will give us a good indication of how
we are doing with Ellie’s feeding and medicine dispensing, we hope.
Our two
main goals for the foreseeable future are; continued weight gain for Ellie and
for us to relax and not treat our little girl like she is in a bubble.
We apologize
for the delay in this update and thank everyone for their continued support.